Chapter 3: Discharge care and planning
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Evidence‐based approaches
Under the Care Act ([6]), carers are entitled to their own assessment and many support services can be provided, including respite, at no charge. The Act represents the most significant reform of care in many years by putting people and their carers in control of their own support (People First [42]). The aim is to ensure that people and their carers are supported in a practical way by providing information, financial and other support, helping carers to remain at work and to care for themselves. It is particularly important that carers who will be taking on the role for the first time when their family member leaves hospital are made aware of the benefits and support available to them from their local authority, since ‘deciding to care or continue caring for someone who is coming out of hospital … can be very difficult’ (Carers UK [7], p.1). Often the first step in raising their awareness might be as simple as letting them know that the role they play with their family member is that of a carer: many people would see themselves as a spouse, child or grandchild rather than a carer.
In addition to understanding that adult carers may be unaware of the support available, it is important to recognize that in some families children take on a caring role, and their needs may go unrecognized. Young carers may struggle with the responsibilities of providing care to parents, and without appropriate support they may feel isolated and distressed (Carers UK [7]). Support for young carers has increased under the Children and Families Act ([10]), which aims to ensure that all children and young people are able to access the right support and provision to meet their needs. When a patient is discharged, provided consent is gained from the parents, it is important to inform community health and social care providers that young carers are involved. This will enable young carers to access additional support services so they can continue in their vital role.