Communicating with people who are worried or distressed

Related theory

Patients will, naturally, have an emotional response to a serious illness. At its most mild, this will consist of sadness and worry and it is expected that people will adjust to their temporary or permanent health‐related circumstances. At its most serious, however, patients experience intense psychological responses such as anxiety states or depression (NICE [201]). This is because illness changes lives, or at least threatens to. Nurses must know how to respond, therefore, to sad and worried patients and their families. The ability to listen fully is perhaps the most frequently used skill or competence of a nurse. Noticing when a patient is worried, listening carefully to their concerns without interrupting, and responding helpfully are components of effective communication with an individual who is distressed. When health workers have such skills, patient outcomes are improved and staff feel more satisfied with their work (Fallowfield and Jenkins [95], Fellowes et al. [100], Ong et al. [216], Razavi et al. [231], Stewart [260], Taylor et al. [266]).
Before learning how to listen and respond to patients’ worries, it is worth knowing about unhelpful communication habits. For example, health workers often focus on physical and practical concerns but ignore the emotional issues of patients (Booth et al. [24], Maguire et al. [163]). This is despite the fact that patients often hint at their worries (Uitterhoeve et al. [274]). Health workers may be eager to give advice, reassurance and information before hearing all of a patient's concerns (Booth et al. [24]). Incomplete listening can lead to a rush to fix problems with an inappropriate solution.

Evidence‐based approaches

Evidence suggests that nurses and other health workers should listen to all of the concerns of patients who express sadness, nervousness or worry – even those that have no resolution (Booth et al. [24], Pennebaker [221]). Nurses should enquire about the resources (help) that patients have around them, and patients should be given an opportunity to describe for themselves what would help, before the health worker offers advice, information or reassurance (Booth et al. [24], Tate [264]). It is also known to be helpful for nurses to use a structure in their own minds to organize their thoughts and questions (Silverman et al. [254]). Patients or their carers will often have disorganized thoughts because their thinking is clouded by emotions. A helpful nurse, on the other hand, needs to be calm, organized and sensitive. The SAGE & THYME model (Connolly et al. [52]) presented below is one way for nurses and other health workers to conduct a structured and evidence‐based conversation. The model suggests a sequence of sensitive questions that allow the nurse to hear about strong emotions and remain calm themselves.

Pre‐procedural considerations

Patients need privacy to discuss emotions and worries; they also need time. Nurses, therefore, should create suitable conditions for patients to describe their worries. Nurses are often busy because there are many competing demands on their time, yet proper listening requires time and privacy. Nurses create time and privacy to dress a wound. They dress wounds expertly, in a logical and sequential way that has been carefully learned and practised. Listening to the worries of a patient also needs uninterrupted time and a logical sequence. This skill must also be learned and mastered if a nurse is to become an expert listener.
Table 5.9  SAGE & THYME
PrincipleRationale
SETTING – think first about the setting. Can you respond to this hint from the patient now or should you return when you and they can protect 10 minutes? Can you create some privacy? Would they like to talk?Patients notice that nurses are busy and withhold worries unless given an explicit opportunity to describe their concerns (McCabe [169], R). It is important to create a setting or environment within which patients or carers can disclose their concerns (Hase and Douglas [122], R).
ASK – ask the patient what is concerning or worrying them (do not focus on problems that you cannot solve – just listen).Patients frequently hint about their underlying concerns. These hints need to be noticed and responded to (Oguchi et al. [215], R). Asking specifically about emotions encourages patients to describe psychological and emotional issues (Ryan et al. [247], R). Asking specific questions about psychological concerns is important (Booth et al. [24], R; Maguire et al. [163], R).
GATHER – gather all of the concerns, not just the first few (ask whether there is something else). Repeat back to the patient what you have heard (this proves that you are listening) and make a list of all the concerns (actually write them down).Listening is an active process, requiring concentration, silences and verbal affirmation that you hear what is being said (Silverman et al. [254], R; Wosket [291], R). It is important to hear all the patient's concerns, to summarize and check that you have understood correctly (Maguire et al. [163], R; Pennebaker [221], R).
EMPATHY – say something that suggests that you are aware of the burden of the patient's worry, such as ‘I can see that you have a lot to be worried about at the moment.’Empathy is about creating a human connection with the patient (Egan [88], R). Empathy shows that you have some sense of how the patient is feeling (Booth et al. [24], R; Maguire and Pitceathly [164], R).
TALK – ask who they have to talk to and what support they have. Make a list of all the people who could help. Ask ‘Who do you have that you can talk to about your concerns?’Patients commonly rely on family and friends for support (Ell [91], R). Good social support is associated with enhanced coping skills of patients (Chou et al. [50], R). Supportive ties may enhance wellbeing by meeting basic human needs for companionship, intimacy and a sense of belonging (Berkman et al. [18], R). It is helpful to know what social support surrounds the patient (Stewart [260], R).
HELP – ask ‘How do these people help?’People's social networks may help them to reinterpret events or problems in a more positive and constructive light (Thoits [267], R). Support from family and friends commonly involves reassurance, comfort and problem solving (Schroevers et al. [251], R).
YOU – ask the patient ‘What do you think would help?’ or ‘What would help?’It is helpful to use a style of problem solving that seeks the patient's own solutions first (Booth et al. [24], R; Tate [264], R).
ME – ask the patient ‘Is there something you would like me to do?’It is helpful to use a negotiated style of communication that gives the patient control over what, if any, professional help they receive with their concerns or dilemmas (Fallowfield and Jenkins [95], R).
END – summary and strategy. For example, say ‘I now know what you are worried about and the support you have. I know what you think would help and what you want me to do. I'll get on with that and come back to you when I can. Is it OK to leave it there for now?’It is important to summarize and close an interaction (Bradley and Edinberg [33], R). This is respectful to the patient, reinforces for them that they have been listened to, and signals that the interaction has come to an end. E
Table 5.10  Prevention and resolution (Principles table 5.9)
ProblemAction
Direct requests: patients often have concerns at the same time that they have direct requests or questions. When listening for concerns, it is easy to be distracted by direct requests. The following is an example: ‘I keep hearing different things and it makes me feel as though nobody really knows what is happening. That's scary for me. Am I having this scan or not?’It is tempting to deal only with the direct request (about the scan) and to ignore the other cues and concerns (different messages, nobody knows what is happening, scary). However, the direct request cannot be ignored either. A clear‐thinking nurse will notice both the direct question and the other cues and concerns, and will respond accordingly. For example: ‘I hear that you are scared, that you feel that nobody knows what is going on, that you are getting different messages and that you want to know about the scan. I promise to find out about the scan; would you prefer me to do that straight away or can I come back to that once we've discussed you feeling scared and that nobody knows what is going on?’ In this way, the direct question is addressed but the process of gathering concerns continues. The nurse is back in SAGE because they have ‘parked’ the request about the scan. Alternatively, they can immediately find out about the scan and then return to the other concerns.
Nobody in the ‘T’ of THYME: some patients will have nobody to talk to, and no people in their life to help them think through or cope with the difficulties they face. This becomes obvious in the ‘T’ question in THYME (‘Who do you have that you can talk to about your concerns?’).In these circumstances, there is no purpose in asking the ‘H’ question (‘How do these people help?’). Move straight on to the next question: ‘What do you think would help?’
Mistaking the ‘Y’ of THYME: some learners of the SAGE & THYME model misuse the ‘You’ of THYME by wrongly interpreting this as a challenge to patients: ‘What can you do for yourself?’This is not recommended. It risks the unfair suggestion that the patient is not doing enough for themselves. Nurses should practise hearing themselves asking the correct questions as follows: ‘What do you think would help?’ and ‘Is there something else that would help?’. These questions relate to the patient's own ideas about what could be helpful. They are important because it is suggested that nurses should seek the patient's own ideas about what would help before they ask about what they can do to help as this helps patients to retain a sense of control and personal agency in a situation where they often feel out of control. E