Chapter 5: Communication, psychological wellbeing and safeguarding
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Source: Adapted from NHS England North ([199]).
Mental Capacity Act ([176])
Definition
A person is judged to have mental capacity if they can understand and retain information for long enough to consider its meaning and merits and can then communicate their decision to others.
Related theory
In order to protect people who are deemed to lack capacity and to enable them in so far as is possible to be a part of their health‐related decision making, the following statutory principles apply:
- Nurses must assume a person has capacity unless it is proved otherwise.
- Nurses must take all practicable steps to help patients to make their own decisions.
- Nurses must not assume incapacity simply because someone makes what the nurse and others consider to be an unwise decision.
- Nurses must act in the best interests of people who are deemed to lack capacity.
- Nurses must carefully consider which actions to take to ensure the least restrictive option is implemented.
Within the environment of a busy hospital, emergencies can be challenging to manage. The nature of the emergency may be such that there is insufficient time to conduct all necessary investigations and to consult with all the relevant people; as a result, there is the potential for capacity to be misjudged. The Mental Capacity Act ([176]) states that in these situations, when a nurse or other healthcare professional has acted in the best interests of the patient, they will not be liable for that decision and the following actions. These actions can include restraint if it is judged to be proportionate and necessary to prevent harm (Section 6), and even ‘a deprivation of liberty’ if this is necessary for ‘life sustaining treatment or a vital act’ while a court order is sought if need be (Section 4B).
Clinical governance
Pre‐procedural considerations
The Mental Capacity Act ([176]) provided the legal framework for the creation of the Independent Mental Capacity Advocate (IMCA). The IMCA helps vulnerable people who lack capacity and are facing important decisions, including serious healthcare treatment decisions, and who have nobody to speak for them. Local IMCA services and organization safeguarding leads can advise when the involvement of the IMCA may be appropriate, for example when a patient who lacks capacity has no appropriate person to speak on their behalf with respect to a serious medical treatment or a change in accommodation.
It is prudent to identify patients who lack capacity, or who are likely to lack capacity in the future, and ascertain whether they have communicated or delegated their decision making in advance. Declarations (some of which are legally binding and some of which are not) can inform best interests decisions and care plans (Box 5.25).
Box 5.25
Processes for communicating or delegating decision making when a person lacks capacity
- A lasting power of attorney (LPA) is a person who is legally nominated (and accepts this nomination) by a patient to make decisions on their behalf if they are assessed as lacking capacity. An LPA can be nominated for finances and property, and/or health and welfare (Mental Capacity Act [176]).
- An advance decision to refuse treatment (or ‘living will’) is a legally binding written statement declaring that certain medical treatments in certain situations are to be refused. This information instructs health and social care staff, as well as family, when a person subsequently lacks capacity and is unable to make their own decisions (Mental Capacity Act [176]).
- An advance statement is a written statement that outlines a person's wishes and preferences for future health and social care decisions, to help others make decisions on their behalf if they do not have the capacity to make those decisions. An advance statement is not legally binding.
Principles of mental capacity assessment
Assessment of capacity involves a two‐stage test (Figure 5.22). Before assessing a person's capacity to make a decision, it is important to be clear about what decision the patient is required to make, so that the capacity decision is specific. Capacity is a fluctuating state and must therefore be assessed each time a decision is made:
- The first test of capacity is whether or not a person has an impairment of the mind or brain (e.g. a mental ‘illness’, dementia or learning disability).
- The second test of capacity is whether or not they are able to understand, retain and weigh up information required to make a decision and to then communicate that decision.
If someone is assessed as lacking capacity and is therefore unable to consent to or refuse a medical test or treatment, then nurses and their colleagues need to act in the patient's best interests. This is best achieved by working with the patient, other healthcare staff and, where applicable and appropriate, the patient's carers (Box 5.26).
Box 5.26
Making a best interests decision
When a person is assessed as lacking the capacity to make a specific decision, nurses have a duty of care to support the healthcare team to act in the patient's best interests. To make a best interest decision:
- Do not make assumptions about the person's capacity and what they want based on their age, appearance, condition or diagnosis.
- Consider whether the person will in the future have capacity in relation to the matter in question and continue to assess their capacity.
- Encourage the person to participate as fully as possible in any decision making.
- Consider the person's past and present beliefs, values, wishes and feelings so that decisions made will be respectful of their worldview.
- Consider the views of others who may know the patient well, for example carers, relatives, friends and advocates.
- Consider the pros and cons of any options both in the short term and in the longer term.
- Select the least restrictive option.
Post‐procedural considerations
Following an assessment of capacity and any best interest decisions, nurses must consider the tasks of confidentiality, communication, record keeping (Box 5.27) and reporting. Nurses must follow local policies and procedures, and seek guidance from their manager as appropriate.
Box 5.27
Record keeping following a capacity assessment and best interests meeting
Documenting the capacity assessment
Before assessing capacity (document details and evidence)
- What decision is to be made?
- Is there an impairment or disturbance in the functioning of the mind or brain (e.g. brain injury, delirium, dementia, learning disability, mental ‘illness’, or another condition related to a specific disease)? If so, what evidence is there for this impairment or disturbance? Is it temporary or permanent?
Determining capacity (document details and evidence)
- Is the person able to understand the information relating to the decision to be made?
- Is the person able to retain information relating to the decision long enough to make the decision?
- Is the person able to weigh up the information relating to the decision?
- Is the person able to communicate their decision by any means?
- If the answer to any of the above questions is ‘no’, have all reasonable efforts been made to aid the person's understanding, retention and weighing up of information and to communicate their decision?
Advance statements (document details and evidence)
- Has an advance decision of some kind (e.g. lasting power of attorney, advance statement or advance decision to refuse treatment) been made? If so, what date was this made and what are the details?
Outcome of assessment (document details and evidence)
- What support was provided to the person to maximize their capacity to make the decision required (e.g. additional time to make the decision, simplified materials, involvement of family or carers)?
- Can the decision making be delayed until a time when the person is likely to have regained capacity to make the decision?
- Did the person lack capacity because of their impairment or disturbance of the mind or brain (e.g. brain injury, delirium, dementia, learning disability, mental ‘illness’, or another condition related to a specific disease)?
Documenting the best interests meeting
- Date and location of meeting.
- Who was consulted about the meeting and who was at the meeting? Provide names, roles/relationships (e.g. someone close to the patient, lasting power of attorney, Independent Mental Capacity Advocate, Court of Protection Deputy) and contact details.
- What was the purpose of the meeting?
- Confirm agreement that the person lacked capacity in relation to the decision to be made.
- Confirm that lack of capacity for the decision was permanent, or if it was temporary why the decision making could not wait.
- Is there an advance decision to refuse treatment or an advance statement expressing the patient's views, wishes, values or beliefs? (Include copies of document(s).)
- Name and role of decision maker (include copies of document(s) relating to lasting power of attorney).
- What is the proposed treatment? What are its risks and how might these risks be managed?
- What are the risks of not carrying out the proposed treatment?
- What are the views of the different people in the meeting, including people who know the patient best and the Independent Mental Capacity Advocate (if relevant)? Was there, or could there be, any dispute about the decision made?
- What was the least restrictive option available? Will restraint be used and, if so, are Deprivation of Liberty Safeguards required?
- What were the best interests decision, plan and time frames?
- When was the best interests decision made if it was not made at the meeting?
- The decision maker needs to record their name, designation and contact details.
Source: Adapted with permission of the Royal Marsden NHS Foundation Trust.