Post‐procedural considerations

Initial and ongoing care

Post‐operative stoma care

In theatre, an appropriately sized transparent drainable appliance should be applied. This should be left on for approximately 2 days. For the first 48 hours post‐operatively, the stoma should be observed for signs of ischaemia or necrosis, and stoma colour (a pink and healthy appearance indicates a good blood supply), size and output should be noted, as should the presence of any devices, such as ureteric stents or a bridge with a loop stoma (Boyles and Hunt [33]).
Table 6.13 recommends the most appropriate bag type to use on each type of stoma and the expected output. The drainable appliance should always be emptied frequently and gas should be filtered out of the pouch via the filter; however, if gas builds up, allow it to be emptied from the pouch to prevent ballooning. The appliance should not be allowed to get more than half full with effluent. If the appliance becomes too full, leaks may occur and the weight from the effluent or the pressure from gas may cause the appliance to fall off. A leak‐proof, odour‐resistant, well‐fitted appliance does much to promote patient confidence at this time (Black [28]). The first time a bowel stoma acts, the type, appearance, quantity and consistency of the matter passed should be recorded; this includes any flatus that may be passed (Black [24]).
Table 6.13  Decision tool to use when selecting an appropriate bag or pouch
Type of stomaExpected post‐operative outputRecommended bag to be usedExpected stoma output on dischargeRecommended bag to be used on discharge
Colostomy
Haemoserous fluid
Flatus
Liquid or loose stool
Clear drainable bagSoft formed stool: bowel action one to three times a dayClosed opaque bag with viewing option
Ileostomy
Haemoserous fluid
Liquid or loose stool
Flatus
Clear drainable bagLoose stool: approximately >600 mL per dayOpaque drainable bag with viewing option
UrostomyUrine and mucusTwo‐piece clear urostomy bag with tapUrine: 0.5 mL/kg/hClear or opaque urostomy bag with tap, plus a urostomy night bag
Double‐barrelled wet colostomyUrine, mucus and faecal outputTwo‐piece system with a high‐output pouch, or a urostomy pouchFirst few days urine only, then soft stool with the urineOne‐ or two‐piece beige pouch with viewing option, plus a high‐output night bag
Source: Adapted from Adams et al. ([5]).
Immediately post‐operatively, patients should not be expected to perform their own stoma care. However, if appropriate, teaching begun pre‐operatively can be put into practice within the first 24–48 hours following surgery. During appliance changes, observations should be made of the following:
  • Stoma: colour, size and general appearance: oedematous, flush with abdomen or retracted.
  • Peristomal skin: presence of any erythema, broken areas, rashes, pain or itchiness.
  • Stoma/skin margin (mucocutaneous margin): sutures intact, tension on sutures and separation of stoma edge from skin (mucocutaneous separation).
Any abnormalities should be reported to the stoma care nurse and medical staff (Black [25]). Viewing the stoma may be difficult for the patient, who may be very aware of other people's reactions to it. The patient's reaction to their stoma should be observed and recorded.

Colostomy function

Typically in the first few days, a sigmoid colostomy will produce haemoserous fluid and flatus. By day 5 there should be some faecal fluid and then by day 7–14 some semi‐formed stool. A closed appliance can be used once the output has thickened up. Rarely, a stoma may be formed in the transverse colon, usually as a result of an emergency procedure (Cronin [55]), and in such cases only a small amount of water will be reabsorbed from the faecal matter, so the stool will be less formed. Therefore, a drainable pouch will be required.
Patients with a sigmoid colostomy (ostomates) should generally be advised to have a balanced and mixed diet. To avoid constipation, ostomates are advised to take adequate oral fluids and fibre in the form of five portions of fruit and vegetables per day (Burch [40]). If either constipation or loose stool is a problem, then dietary intake should be reviewed. Ostomates may find that their colostomy is usually active at particular times of the day, but ultimately the only means of gaining control with a sigmoid colostomy is by using a plug system or by regular irrigation. Stoma care nurses will need to assess patients for their suitability for using either a plug system or irrigation. The patient's consultant must approve of irrigation for the patient.

Ileostomy function

Typically, for the first few days, the stoma will produce haemoserous fluid and flatus. By days 5–10 there will be brown faecal matter. The fluid output after surgery can be as much as 1500 mL every 24 hours but this should gradually reduce to 500–850 mL every 24 hours as the bowel settles down (Black [29]). It is important that fluid balance recordings are made and serum electrolytes are measured as patients are at risk of sodium, potassium and/or magnesium depletion (Goodey and Colman [90]). Sometimes the output from a stoma remains high (>1000 mL every 24 hours), which may be due to the amount of small bowel removed during surgery or an underlying bowel condition; these patients require careful management. Patients who continue to have a high output from their stoma may need to be managed by specialist teams that include gastroenterologists, dietitians and stoma care nurses in order to provide ongoing support (Slater [228]).
The effluent from an ileostomy takes on a porridge‐like consistency when a normal intake of food is established (Burch [40]). A drainable appliance is therefore used. The effluent contains enzymes, which will excoriate the skin (Burch [39]); therefore, if the pouch leaks, it must be changed promptly to prevent skin breakdown. The effluent cannot be controlled but may vary throughout the day. Patients with ileostomies often find that the output is thicker first thing in the morning and after meals, or the output is looser with reduced dietary intake (Burch [40]). Output can vary between watery, loose and soft stool depending on the time of day and what the patient has eaten. Sometimes medication that reduces peristaltic action, for example codeine or loperamide, may be used to control excessive watery output. If using loperamide, this should be taken half an hour to an hour before food in order to achieve an optimal effect.

Urostomy or ileal conduit function

Urine will dribble from the stoma every 20–30 seconds and it will start to drain immediately. Normal output is 1500–2000 mL every 24 hours but it may be less after periods of reduced fluid intake, for example at night. Urinary stents (fine‐bore catheters) may be in place, from the ureters past the anastomosis and out of the stoma. They are placed to maintain patency and protect the suturing until primary healing is completed (Geng et al. [84], Leach [124]). Stents usually remain in situ for 7–14 days depending on the surgeon and patient factors such as condition of the stoma, previous radiotherapy and renal function.

Body image

Stoma formation creates many issues for patients and many struggle with body image. Studies suggest that this is often overlooked (Wallace [240]). The circumstances in which the stoma is formed will influence psychological recovery (Di Gesaro [67]). Communication is key and it is important to allow the patient and their family to discuss their concerns and anxieties. Therefore, stoma care nurses play a vital role in supporting the patient and their family. It is important to promote patient independence and acceptance.

Diet

Initially, all patients will start with sips of water, then move on to free fluids, and then to a light diet. In the absence of nausea and vomiting, they can proceed with building up their dietary intake. Colostomists and urostomists should be encouraged to eat a wide variety of foods and drink 1.5–2 L of fluids each day. People's digestive systems react in individual ways to different foods and so it is important that patients try a wide range of foods on several occasions and that none should be specifically avoided (Burch [40]). Patients can then make decisions about different foods based on their own experiences. Explanations should be given of how the gut functions, how it has been changed since surgery and the effects certain foodstuffs may cause.
However, patients with an ileostomy should use caution with foods that will increase output as these may cause a high‐output stoma. A person with an ileostomy should also be aware of what to do if the output is watery for longer than 24 hours (Goodey and Colman [90]). The normal output from an ileostomy should be toothpaste‐like or porridge‐like in consistency and the patient should empty the pouch approximately six to eight times a day (approximately 600–800 mL in 24 hours) (Cronin [56]). If the patient has watery stool for over 12 hours, they should consider increasing the amount of starch in their diet, such as white bread, white pasta, white rice, noodles and potatoes. They should avoid fibre, and in particular they should reduce their intake of fruit (including fruit juice) and green leafy vegetables. In addition, they can stagger eating and drinking so that they are not doing both at the same time, spacing them at least half an hour apart (Goodey and Colman [90]).
The patient should have been prescribed some medication to reduce diarrhoea, such as loperamide. They should take this in accordance with instructions from their prescriber. Loperamide needs to be taken half an hour before each meal to slow the bowel down (Goodey and Colman [90]).
If a person with an ileostomy has had a watery output for more than 24 hours or consistently has a watery output, they should contact their stoma care nurse or doctor. They must be aware of the symptoms of dehydration, such as headaches, dizziness, thirst, reduced and darker‐coloured urine, cramps and tingling in the hands (Goodey and Colman [90]). Patients may be at risk of acute kidney injury if the dehydration continues. In particular, their electrolytes (sodium, potassium and magnesium) are likely to be outside normal parameters.
An ileostomy patient can help to rehydrate themselves by making up a rehydration solution (Box 6.5) and drink a litre of this during the course of 24 hours. They should reduce their intake of tea and coffee and not take any fizzy drinks (Goodey and Colman [90]).
Box 6.5
An example of an oral rehydration solution: St Mark's rehydration solution
  • 6 level teaspoons (5 mL spoonfuls) or 20 g of glucose powder
  • Half a teaspoon (2.5 mL) or 2.5 g of sodium bicarbonate
  • 1 level teaspoon (5 mL spoonful) or 3.5 g of salt
  • 1 L of tap water
The patient may add squash or cordial to flavour the solution.
Source: Cronin ([56]), Goodey and Colman ([90]).
Patients with colostomy or ileostomy formation do not have the same control as with an anal sphincter, so passage of wind cannot be controlled. High‐fibre foods such as beans and pulses produce wind as they are broken down in the gut; hence, individuals who eat large quantities of these foodstuffs may be troubled by wind. There are several non‐food causes of wind, such as chewing gum, eating irregularly and drinking fizzy drinks, and these should be considered before blaming a particular food. Eating yoghurt or drinking buttermilk may help to reduce wind for these patients. Green vegetables, pulses and spicy food are examples of foods that may cause colostomy and ileostomy output to increase or become watery. Boiled rice, smooth peanut butter, apple sauce and bananas are some of the foods that may help to thicken stoma output (Black [23], Burch [40]).
Some foods, for example tomato skin and pips, may be seen unaltered in the output from an ileostomy. Celery, dried fruit, nuts, fibrous fruit (such as mango) and potato skins are some of the foods that can temporarily block ileostomies (Burch [40]). The blockage is usually related to the amount eaten and the offending food can be tried at another time in small quantities, ensuring it is chewed well and not eaten in a hurry.
There are no dietary restrictions with a urostomy, although bowel activity may be temporarily affected if a portion of the ileum has been used for the stoma. It must be stressed, however, that an adequate fluid intake must be maintained to minimize the risk of urinary tract infection due to a shortened urinary tract. The recommended fluid intake for all individuals is 1.5–2 L per day (Burch [40]). Fluid intake should be increased in hot weather and at times when there is an increase in sweating, for example with exercise or fever. Patients should be made aware of certain foods that may cause a change to the usual character of the urine. For example, beetroot, radishes, spinach and some food dyes may discolour urine; some drugs may also have this effect, for example metronidazole and nitrofurantoin. Similarly, following consumption of asparagus or fish, urine may develop a strong odour.

Fear of malodour

This is a common fear for patients with bowel stomas, often based on hearsay or experience with other ostomates in hospital or the community. Appliances are odour free when fitted correctly. Flatus may be released via charcoal filters, and deodorizers are available. The individual must be reassured, however, that any problems that occur post‐operatively will be investigated, with a good possibility of their being solved by such means as the use of alternative appliances (Black [29]).

Sex and the ostomate

The possibility of sexual impairment for both men and women after stoma surgery depends on the nature of the operation and the ensuing damage to the nerves and tissues involved. The psychological impact of the surgery and its effect on the individual's body image must also be taken into consideration. Surgery that results in physical sexual disability will have psychological repercussions, while some sexual difficulties may be of psychological origin (Humphreys [104], Reese et al. [209], Williams [251]). Impairment may be permanent or temporary. In the latter case, resolution of the difficulty may take anywhere up to 2 years. Pre‐ and post‐operative counselling should be offered for both patient and partner.
All patients may experience loss of libido and sexual desire. Females having cystectomy for cancer will in most cases require anterior exenteration and vaginal reconstruction. This includes removal of the urethra and a vaginal reconstruction, which affects both vaginal length and blood supply to the vagina and clitoris. Consequent sexual dysfunction occurs and patients must be counselled accordingly in the pre‐operative period (Zippe et al. [261]). In males, ejaculatory disturbances occur following cystectomy so men facing this surgery should be offered sperm banking prior to surgery. Erectile dysfunction is a common complication of all pelvic surgery and there are a number of treatment options available. These include oral medications, such as phosphodiesterase type 5 inhibitors (PD5 inhibitors), sublingual apomorphine, intraurethral and intracavernosal injections, vacuum devices and penile implants (Broholm et al. [37], Geng et al. [85], NHSBSA [167], Park et al. [187]). Patients with persistent erectile dysfunction should be referred for penile rehabilitation.
Female sexual dysfunction after colorectal and pelvic surgery is common (Bregendahl et al. [35], Burch [42]). Typically, a loss of libido and satisfaction occurs. Female patients may experience dyspareunia; this may be due to narrowing or shortening of the vagina, a reduction in the volume of vaginal secretions or changes in genital sensations (Reese et al. [209]). The use of a lubricant, adopting different positions during penetrative intercourse or encouraging greater relaxation by extending foreplay may help to resolve painful intercourse (Humphreys [104]).

Planning for discharge

Discharge planning for a patient with a stoma should commence once the patient is admitted. It is important to set a provisional discharge date and set realistic goals with the patient. Prior to discharge, ideally the patient should have returned to their prior level of independence, be eating a normal diet and be competent in stoma care. Family or close friends are likely to require support and information so that they are in a position to help the ostomate and this should be provided as much as possible before discharge. If family or close friends are involved during all stages of stoma surgery, and patients are well informed, patients are better able to adapt to life with a stoma (ASCN [10], Cronin [55]).
Acceptance of the stoma is a gradual process and, on discharge from hospital, patients may only be beginning to adapt to life with a stoma. Indeed, in a survey of 100 patients following stoma formation, 56% felt that support was needed for the first 6 months, indicating the ongoing need for professional advice and support for a substantial amount of time after stoma surgery (Wallace [240]). Continuity of care for these patients is crucial. Effective communication and collaboration between healthcare professionals are key to psychological adaptation and successful rehabilitation (Borwell [31], Di Gesaro [67]). See Figure 6.34 for an example of a discharge checklist.
image
Figure 6.34  An example of a stoma discharge checklist. Source: Reproduced with permission of The Royal Marsden.

Follow‐up support

Patients should be discharged home with:
  • 2 weeks of stoma supplies
  • contact details of the community stoma care nurse
  • prescription details of the products being used
  • information on the delivery company, if relevant (ASCN [10]).
Patients should be discharged with enough stoma products to last until a prescription is obtained from their GP. Written reminders should also be provided on how to care for the stoma, how to obtain supplies of appliances and any other information that may be required. Patients should have the details of non‐medical stoma clinics, details about the relevant agencies and information about voluntary associations. Arrangements should also be made for a home visit from the stoma care nurse and/or the community nurse (Davenport [59]). Figure 6.34 provides an example of a discharge checklist. Patients should then have annual reviews to ensure that the product remains suitable for them (Black [28], Davenport [59]).

Obtaining supplies

All NHS patients with a permanent stoma or cancer are entitled to free prescriptions for their stoma care products, and should complete the relevant forms for exemption from payment. Appliances can then be obtained from the local chemist or free home delivery services.